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Frist, Dodd Applaud President's Signing Of Organ Donation Bill
posted April 6, 2004

WASHINGTON, D.C. – U.S. Senate Majority Leader Bill Frist and Senator Chris Dodd (D-CT) today hailed the President for signing the Organ Donation and Recovery Improvement Act.” The legislation, which became law late Monday, establishes a strong evidence-based approach to enhancing organ donation and recovery.

“This new law represents the most significant reforms to organ donation in a decade,” said Frist. “Organ donation saves lives, and this bill will improve the overall process for organ donation to benefit the more than 83,000 Americans currently awaiting an organ transplant. I applaud my colleagues in Congress and the President for ensuring that patients and families will have the greatest chance to receive a life-saving organ.”

“Organ donations provide the gift of life to so many loved ones around the country and I am grateful that my colleagues in the Senate, as well as the President, recognized the critical importance of and acted quickly to pass this legislation,” said Dodd. “It is a step in the right direction toward increasing public awareness of the importance of organ donation and providing funding to improve the science of donation and recovery.”

The Organ Donation and Recovery Improvement Act, which was first introduced February 2002, offers a comprehensive approach to increasing organ donation, while improving the overall process of organ donation and recovery. Specifically, the bill would improve coordination and evaluation of existing federal organ donation and transplantation research activities. It would establish demonstration projects to discover new opportunities to increase organ donation. The bill would also enhance the coordination of public awareness and the education of health professionals.
 

 

Organ donors are nation's unsung heroes
Wednesday, January 28, 2004

By TERESA HICKS
Times-News

You don't have to rush into a burning building.

You don't have to jump into a raging river, either. You don't even have to take a class in CPR to become a hero by saving someone's life.

When a person agrees to become an organ donor, the effects of that decision are far-reaching.

"Seven different people's lives can be saved, and up to 100 more can be improved through tissue transplants," said Kim Kennedy, senior public education coordinator for Mountain Region Donor Services.

And while it's easy to see how organ donation benefits those in need of a transplant, Kennedy understands firsthand that the benefits extend far beyond the recipient's medical miracle.

Kennedy's husband died in November 2003 after suffering a brain aneurysm and donated life-saving organs to three different people.

"One of Jim's kidneys was transplanted to a lady in Memphis who is 52 years old, and she had been waiting for a kidney for almost three years," said Kennedy. "His other kidney went to a 45-year-old lady in Nashville, and his liver was also transplanted in Nashville to a 50-year-old gentleman."

"It has been a blessing to me," she said. "Jim was 43 years old, and none of us saw this coming. It's a terrible tragedy in our lives, and it's the darkest time I've ever experienced.

"But through organ donation, three people are alive because of my husband's giving heart. And that's the way Jim lived his life - he was always giving to others. Even if he didn't have it to give, he'd find a way. So this is a way to honor him. It gives us comfort, it gives us hope for the recipients, and it gives us a ray of light in a very dark time."

Between 15,000 and 17,000 people who die in the United States each year are eligible to donate organs, but according to the Association of Organ Procurement Organizations, only about 54 percent of them actually donate.

There are a number of reasons why people are hesitant to give their organs or allow a family member's organs to be donated, but many of those reasons involve misconceptions about the donation process, Kennedy said.

"Disfigurement is a major concern for some people," she said. "They're concerned about whether or not they can have an open-casket funeral. But they can. My husband did."

"A lot of people are afraid of bone donation in particular because they think of the disfigurement issue, but we put in artificial bones, so the person's body still looks normal," Kennedy said.

"Another consideration is religious questions. A lot of people are unsure what their religion says about organ donation. But most major religions are either in favor of donation or they leave it up to their individual members as a personal choice.

"Another concern is that people think it's going to cost them because there's surgery involved. But they don't pay anything for the donation process. The recovery agency pays for that."

Some people are afraid that if they are a registered organ donor, they would receive a lesser quality of care if they should ever find themselves in a life-threatening situation, but Kennedy said there is no reason to believe such a thing would happen.

"The doctors and nurses that are taking care of the person who might be a potential organ donor in the hospital don't have anything to do with the transplantation process," she said. "They're not transplant surgeons. They're not the organ recovery agency. So there's no incentive for them to make that happen. The other thing is it's not medically feasible because they don't even know who that person would match."

The organ transplantation process can begin only after a patient has been declared brain dead.

"When someone passes away in the hospital, the hospital calls us and lets us know, and if the person meets the criteria for donation, then our coordinators will check and see if they have registered with the Department of Motor Vehicles to be an organ donor," said Kennedy.

"If they have not, then our coordinators will ask the family if the person wanted to be an organ donor. If they don't know what the person's wishes were, then it's up to the family to decide. But if the person has designated their wishes via the driver's license or through a donor card, then the family can't say no."

"If the person has decided to be a donor or if the family decides to donate, then our coordinators will talk with them about the patient's medical and social history and fill out the forms that need to be filled out.

"Then our organ recovery coordinators will find recipients that match the donor and call those transplant centers to get the organs placed. The surgeons from the transplant centers will come into the hospital to do the organ recovery, and they take the organs with them to their transplant centers where they will be transplanted into the recipient," Kennedy said.

The donation process is usually swift and does not delay the donor's funeral, she said.

While there are a number of ways to become an organ donor, the most important step to take is to notify your family.

"Most of the time when someone donates organs, it's through the family and not through any kind of documentation," Kennedy said.

For those who want to leave behind a record of their decision, however, legal documentation of such a wish is not hard to come by.

"The easiest way to be an organ donor is to just sign a donor card and carry it with you," said Kennedy. "You can call (your donor services office) to request a free donor card."

"If you want to be on the registry through the DMV, you have to check that box when you renew your driver's license. On the Tennessee driver's license application, it is a check box. But you sign to the right of it, so it is a legal document," Kennedy said.

"Also in Tennessee, the back of your driver's license is a donor card, so you can just fill that out too," she added.

In some states, a person's family can override their decision to donate organs. But in Tennessee and Virginia, Kennedy said, a person's signature on their organ donor card or driver's license is legally binding and can't be disregarded.

"But it's very important to talk with your family," Kennedy said. "If you haven't actually signed that donor card on the back of your driver's license, or you haven't signed a form with the DMV, then your family is going to have to sign the form."

Ways to become an organ donor

•Tell your family of your desire to donate.

•Check the organ donor box on your driver's license application.

•Fill out the organ donor card on the back of your driver's license (in some states).

•Call (your local donor services office) to have a free organ donor card mailed to your home.

•Indicate your desire to donate in your living will.

Facts About Organ Donation

•Organ donation does not disfigure the donor's body. An open-casket funeral is still possible.

•Organ donation involves no cost to the donor's family or estate.

•Most major religions either advocate organ donation or leave it up to the individual as a personal choice.

•A patient's status as an organ donor will never affect the quality of care he or she receives in the hospital.

•In most cases, organ donation does not delay the donor's funeral.

•A single person's choice to donate organs and tissue can save the lives of up to seven people and improve the lives of over 100 more.

Reprinted with permission from the author and Kingsport Times-News

TDS Receives the first ever "Special Award for Life-Giving Service" from the United Network for Organ Sharing for its Life Saving Efforts on September 11  more

Adam's Story

Today, an eight-year-old boy is playing with his parents at their home in Louisiana.  Three years ago, he was in a hospital bed, dying of kidney disease. A 51-year-old man has received a new heart, and can look forward to a long and healthy life with his wife and child.  That was unlikely a few years ago.  Two Tennessee senior citizens are enjoying the gift of restored vision.  The lives of 50 others have been saved or dramatically improved through the transplantation of  other organs and tissues such as bone and skin.

They can all thank 22-year-old Adam and his parents.  Adam was killed in an automobile accident in 1998.  “Adam’s life had ended, but to waste the opportunity to give life to other people would have been a sin,” says his father.  “The hurt is deep, but these days we can acknowledge that some good has come out of this,” he explains.  “This is a continuation of Adam’s life – that’s a source of solace for us.”  Even Adam seemed to agree.  Among the condolences that poured in after his death was a letter from Adam’s philosophy instructor. 

Enclosed in the letter was a copy of Adam’s eerily prophetic final term paper.  “I still have a desire to believe that ‘death’ is, in fact, not a death,” Adam wrote.  “I will ultimately, somehow, remain alive.”

 

Memories of 

Brandy Ann

 

By:  Juanita Hicks, Donor Mother

     In September 1997 our beautiful 18-year-old daughter was in a car accident that took her life.  Brandy Ann Hicks was a very special young lady and our only child.  She was spoiled and she knew it, but she was such a wonderful child, never giving us a minute’s trouble.  She was a “people person” with friends from six months old to 93 years.  Brandy Ann was always thinking of others and she was loved by many.  It is difficult for me to put into words what I want everyone to know about Brandy.  God blessed us with a very special little girl.  

 

On her 16th birthday she got her driver’s license.  We had her take driver’s education in high school and as a result she attended a class on organ donation.  Well, “Miss Priss”, as I often called her, bounced through the front door of our house that day and said, “Momma, I am going to donate my organs!”  It caught me so off guard, I looked at her like she was a crazy person. This was my daughter, my only child – I told her I did not want to have this conversation.  I assured her that I would be gone long before her.   Nevertheless, she insisted, saying, “Now, Momma, if anything happens to me I want to donate my organs – please donate my organs.”  So, we started to talk about it.  The more she talked, the more interested I became and got caught up in her enthusiasm.

 

Well, when Brandy was in the car accident, the doctor told us her chances were “slim to none”.  He went on to say, “Have you considered organ donation?”  With everything that had happened, we just didn’t want to talk about that then.  The car wreck occurred on a Friday night.  We stayed up all night at the hospital and the following morning at 9:30 a.m. the doctor came and told us that Brandy was brain dead and that she was gone.  Again, he asked, “Have you thought about organ donation?”  Recalling our conversation about donation and her firm belief in it, we said yes. 

 

Brandy Ann’s heart now beats in the chest of a lady in Mississippi.  Her liver saved the life of a man in Tennessee and one of her kidneys and her pancreas went to a gentleman in North Carolina.  Her other kidney is with a young woman in her thirties.  I have had contact with three of the four people that Brandy Ann saved by donating her organs.  It is a joy to know that our baby girl saved their lives by being so loving and kind.  I can’t begin to tell you how bad it hurts not to have her with us.  I don’t think we will ever get over the death of our daughter and what our loss has done to our hearts.  But, she taught us so much in her 18 years that has made us better people.  It was and will continue to be an honor and privilege to love her.      

 

 


Teresa Roberts of Gray holds a photo of her son, Doug. (Staff Photo by Lee Talbert)

A family’s difficult choice helps others to live

By Sue Guinn Legg
Johnson City Press Staff Writer

When 21-year-old Doug Roberts of Gray died in a car crash last November, his obituary listed his survivors, his education, his employment and his church.

What the notice did not tell was how the young man’s parents, in the midst of their grieving, turned their son’s tragic death into a miraculous gift of life for scores of unknown others.

“I couldn’t believe my son was dead and I was standing there being asked to donate his organs,” Teresa Roberts recalls of that fateful morning at Holston Valley Medical Center when she first learned her son had not made it.

Later in the day, at home and surrounded by friends who had gathered around her, Roberts spoke again with the hospital’s donor services worker.

Because Doug’s accident had occurred several hours before his body was discovered, his vital organs had been lost, the empathetic caller told her. Then, for the next half hour, she listened as the woman explained of how more than 100 other of her son’s tissues and organs could be used to restore health and function to others.

His corneas would restore someone’s sight. His heart valves would heal a defective heart. Grafts from his skin would cover the scars of someone critically burned. His bones, tendons and ligaments would restore function to the severely disabled.

Precious, final gifts from their son would ease suffering and improve the quality of life for people suffering the crippling effects of trauma and disease.

“His dad and I decided to let them take them. If someone else could use them, so be it,” she said.

“The gentleness, thoroughness and kindness shown to me and the professional handling of the donation process made a powerful difference for me during that tragic time,” Roberts said.

“Donation does not take away the pain of grief but it allows me to feel something positive came from an otherwise senseless death. It has made coping somewhat easier.

“I always said they would have to bury me if something ever happened to one of many kids because I couldn’t handle it. By the grace of God and help from these donor service folks is the only way I’m getting through this.”

The still grieving mother is taking the opportunity of this month’s observation of National Donate Life month to tell her son’s story for the first time to help promote organ and tissue donation.

Sharing facts on donation, she noted that 16 people die every day while awaiting an organ transplant and that one donor can enhance the lives of more than 100 people.

Encouraging others to donate and to talk to their families about organ donation, she said, “All it takes is signing the back of your driver’s license.”

“Nothing I can do or say can replace my son, but promoting organ and tissue donation seems to help me make some sense of Doug’s tragic death and brings me something of value.

“Douglas left his family the comfort of knowing that part of him lives on. He gave others a chance for a new or better life. He prevented others from knowing the tremendous pain of losing someone they love.”

“One of the most remarkable success stories in the history of medicine,” transplantation provides hope for thousands of people with organ failure while tissue donation helps hundreds of thousands more live fuller lives, notes a brochure from the Mountain Region Donor Services office in Gray. “Unfortunately the need for donations is much greater than the actual number of donors. Commitment to donation can save lives.”

For more information on organ and tissue donation or to sign a donor card, contact Mountain Region Donor Services at 915-0808 or (888) 562-3774.

Reprinted with permission from the author and the Johnson City Press.

 

 

 

 

Regional Offices

Golden State Donor Services 1.916.567.1600 Referrals 1.800.762.8819 Fax  1.916.567.8300

Mountain Region Donor Services 1.423.915.0808  Referrals 1.888.562.3774 Fax  1.423.915.1170 

New Mexico Donor Services 1.505.843.7672 Referrals 1.800.843.7672 Fax  1.505.343.1828

Sierra Eye and Tissue Donor Services 1.916.569.0200 Referrals 1.800.762.8819 Distribution 1.800.435.5780 Fax  1.916.569.0300

Tennessee Donor Services Nashville 1.615.234.5251 1.888.234.4440 Referrals 1.800.969.4438 Fax  1.615.320.1655

Tennessee Donor Services  Chattanooga 1.423.756.5736 Fax  1.423.756.5904

Tennessee Donor Services Knoxville 1.865.588.1031 Fax 1.865.588.5903

Tennessee Donor Services Jackson 1.731.425.6393

Our Corporate Office

DCIDS Organ Services 1.888.234.4440

DCIDS Tissue Services 1.888.234.4399

DCIDS Tissue Orders 1.888.216.0319